I recently visited the Leukemia and Lymphoma Society’s website and was reminded what a wonderful resource this site is for patients and caregivers. You can find educational support regarding specific diagnoses and treatments, as well as the ability to call and talk to an actual person—an “information specialist.” You will also find links to support programs for patients and caregivers, including partnering patients with a peer volunteer who has gone through a similar experience. It can be a tremendous support to have someone to speak with who has previously walked in your shoes and gone through the treatment journey.
Another valuable resource the Leukemia and Lymphoma Society provides is financial assistance to patients with specific diagnoses including the following.
- Chronic lymphocytic leukemia
- Chronic myelogenous leukemia
- Hodgkin lymphoma
- Non-Hodgkin lymphoma
- Myelodysplastic syndromes
- Waldenström macroglobulinemia
If you visit the website, you will find more than one way to receive financial assistance, but the one that my patients most often benefited from was the Co-Pay Assistance Program. This program can be used to assist with costs associated with chemotherapy, stem cell transplant, blood transfusions, prescription co-pays for treatment, insurance premiums, radiation, chelation therapy, blood cell booster medicines, kyphoplasty, photopheresis, and radioimmunotherapy.
The amount of financial assistance varies by diagnosis and is based on the availability of funds, but it can be a significant help to patients and families. According to the website, the following funds currently are available.
- Chronic lymphocytic leukemia—up to $2,500
- Chronic myelogenous leukemia—up to $500
- Hodgkin lymphoma—up to $2,500
- Non-Hodgkin lymphoma—up to $2,500
- Myelodysplastic syndromes—up to $5,000
- Myeloma—up to $10,000
- Waldenström macroglobulinemia—up to $10,000
It is easy to apply, and your doctor’s office can even submit the application on your behalf. You can get an application form online by visiting the website. In addition, there is a very quick turn-around time (7–10 business days) once you apply to find out if your application has been approved. Make sure you and your loved ones take advantage of this available support and visit the Leukemia and Lymphoma Society’s website today to learn more information about all of their resources.
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Jill Weberding, BSN, MPH, RN, OCN®, has been in oncology nursing for nearly 15 years. She has worked as a staff nurse, infusion nurse, clinical research nurse, and most recently in management as the clinical trials department manager at a community cancer center. She is currently self-employed and working as a nurse consultant in East Tennessee, where she resides with her husband and two daughters. Read more articles by Jill Weberding, BSN, MPH, RN, OCN.