Helping the Helpers

I just read a sad but uplifting article about a hospice nurse who had lost her son in the war. Although she had a policy of not sharing her personal life with her patients, she needed to talk and shared her grief with one of her patients in hospice. The patient admitted that she also had lost two sons many years ago.

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eCareDiary.com to Host Regular Online Support Group

eCareDiary, an online resource for family caregivers, will host a monthly family caregiver online support group called “Caregivers Speak!” starting, Tuesday, May 8, 2012 at 2:00 pm EST. BlogTalkRadio will broadcast the live 30-minute event hosted by Margery Pabst on the Caregivers Speak! channel. Participants remain anonymous and are from a wide range of backgrounds and situations, including family caregivers of people with cancer.

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Patient and Caregiver Stress: Listen

Have you ever been in a situation that made you feel like you were meant to be there? Last week, I attended a panel discussion titled “Understanding Patient and Caregiver Stress” and was jolted out of my comfort zone. This panel deserves accolades for telling their stories, speaking their truths, and rattling the nerves of seasoned nurses.

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Drink in the Spring

As the weather becomes a little nicer, it is important to get out and enjoy what nature has provided. Whether you are a caregiver or patient, it is necessary to look at the big picture and where we fit in the world. I often like to look at the birds or insects and think about how all the troubles we experience in our human life do not impact them in the least.

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When Should I Call 9-1-1?

When a person is seriously ill, it can be difficult to decide what is truly an emergency. As promised from my last post, here is a list that will provide you some guidelines. Your loved one’s doctor, nurse, or occupational therapist can provide you guidence regarding emergency situations that can occur related to your loved one’s specific diagnosis.

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Build Your Caregiver Emergency Toolbox

I know that the thought of a loved one in peril can be terrifying, but you can empower yourself with tools to help your loved one and provide medical response teams the information they need to give your loved one the best care.

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Camp Kesem

Camp Kesem is a national organization dedicated to providing a supportive, fun, and meaningful summer camp experience for children between the ages of 6–13 and 14–16 whose parents currently have or have had cancer. The programs are offered free of charge to the children.

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Survivorship Inspires Entrepreneurial Spirit

It seems that many people who have been touched by cancer—as a survivor or a caregiver—often rise from the experience with an entrepreneurial spirit. I wonder if these folks see a need that isn’t fulfilled during their cancer journey that they can do to help others.

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Do Only What Your Loved One Can’t

As a young nurse, it was difficult for me to sit back and watch patients get into a chair or dress themselves. I wanted to make it easier for them, yet I knew they needed to be active and involved. Control and independence are major personality characteristics and to have them taken away can provoke a sense of humiliation or shame.

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We All Need Other People in Our Lives

I have often seen how important it is to have people in your life to help support you through your journey with cancer. Without that assistance, whether it’s from friends or family, it would be so much more difficult to understand diagnoses and treatments, make decisions, get to the hospital and elsewhere for treatment, do chores, and a host of other necessary activities of daily life.

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